Liver Mommas and Families is a group of parents and caregivers of children who have terminal and life-threatening liver disease. Many of our children have had liver transplants. We understand what it’s like to spend long months, holidays and even birthdays in the hospital. We are also no strangers to the costs associated with such long-term medical care. This is why we started Liver Mommas.
In 2011, we started an annual event to bring a holiday dinner and gifts to children and their families admitted to Medstar Georgetown University Hospital in Washington, DC. over the holiday season (The Jingle Bell Drive).
We’ve continued that effort since then, bringing dinner, gifts, and support to Georgetown University Hospital Medical Center, and helping to purchase things from the Child-Life wish list.
In October, 2015, we became a Nonprofit Organization. As of February 23, 2017, we are a 501c3 organization, which means we are fully tax-exempt and all donations to our organization are 100% tax-deductible.
No one in our organization is paid. Every director, board member, and team member work on a volunteer basis. Many of the administrative costs are covered by the founder so that 100% of your donation can go directly to where it’s needed the most.
We would like to be able to develop local chapters in other cities with pediatric liver transplant hospitals, and extend our ability to help families year-round, to navigate the complexities of pediatric liver disease and transplant, find assistance with medical expenses and help provide support financially, in some cases, pending evaluation.
We also send sympathy and care-packages to individual “Liver Families”, year round. Sympathy items include memorial wind chimes, and care packages are tailored to the specific family and can include snacks for the hospital, gift certificates for gas and food, clothing for families who have been relocated abruptly to drastically warmer or colder climates, toys, books, and activities for parents and children in the hospital, and a plush liver.
Additionally, we have found that there is also a need in the pediatric liver transplant community for international medical transportation in areas where the medical system is not as accessible. In 2015, we helped network out to additional charities to find transportation, care and relocation services for a family in Peru whose infant needed a transplant. We’ve received many requests from around the world for help getting from one country, to another, to care for their critically or terminally ill child who is unable to be treated in their current location. We hope to network and grow this area of our organization to be able to better provide these services, as it seems there is a large gap, globally, in this area of medical care.